Pricey GF: I am so sorry for each your dad and your loved ones. You’ve got been pressured to observe Parkinson’s illness regularly over-take this individual that you simply love. I hope that you’re attending a help group for households who’ve comparable points.
It seems that you’re working together with your dad’s physician, however I’ve the sensation that you simply’re unhappy together with his conclusions, so I might recommend that you simply search a second opinion.
Swallowing issues (dysphagia) typically include later stage Parkinson’s and worry of choking can result in the issues that you simply describe. Pureed meals, thickeners for liquids, and different steps, could be instructed by a professional therapist. You might need to attempt the web site essentialpuree.com for schooling and recipes, as properly. The corporate is a part of the Swallow Help Teams on the College of Washington. Moreover, a pharmacist could possibly recommend various strategies for delivering drugs.
One other issue to think about is Lewy physique dementia (LBD), one sort of dementia that may accompany Parkinson’s. I might assume that the physician would have caught this improvement and/otherwise you would have seen different indicators, however a second opinion might assist, right here, too. LBD may cause paranoia to the purpose that folks might imagine that they’re being poisoned, thus they will not eat.
It is necessary to know that there is a large distinction between somebody who could be helped with the correct meals textures and drugs in order that he can nonetheless take pleasure in life and somebody who’s in a really late stage of a illness and is able to let go. A second opinion might allow you to really feel extra snug in figuring out the place your dad is on this spectrum.
Feeding tubes could be thought-about a unprecedented step in sustaining somebody’s bodily life by synthetic strategies. I hope that, early on, your dad was clear in his needs about how far he needed individuals to go to maintain him alive. This data might assist information you as you analysis the professionals and cons of utilizing a feeding tube at his present stage.
Speak by way of all features of your dad’s care with at the very least two docs and talk about his finish-of-life needs if he wrote them down, and even talked about them with you. Then, you’d be extra ready to advocate and transfer ahead with that’s greatest for him. Age is not as huge of an element for most individuals as their high quality of life.
Carol Bradley Bursack is the writer of a help guide on caregiving and runs an internet site supporting caregivers at www.mindingourelders.com. She might be reached at firstname.lastname@example.org.