Toddler with rare birth defect goes home after 650-day stay at hospital

Tuesday marked a homecoming 650 days within the making for 21-month-previous Naomi Hawks. A uncommon defect has pressured the toddler to name Youngsters’s Hospital and Medical Middle residence because the day she was born.

“She’s superb,” stated Mandy Hawks, Naomi’s mom. “She’s taught me what it means to be courageous.”

Naomi is simply shy of two years previous, however her character is something however that.

For the 651 days she’s been alive, a hospital room has been Naomi’s life.

“The docs did not anticipate her to stay to be 1,” Mandy Hawks stated.

Naomi and her twin, Hannah, have been born prematurely, however Naomi’s battle can be a lot greater than her sister’s. She was born with an stomach defect referred to as an omphalocele.

“She actually has two main issues,” stated Dr. Andrew Macfadyen at Youngsters’s. “One, her intestines are outdoors the physique and the second is that her lungs are too small.”

The extraordinarily uncommon situation requires Naomi to breathe by way of a trach and ventilator.

“A number of events she has been on demise’s door actually and but she pulls by means of it,” Macfadyen stated.

Naomi is small, however mighty, with a robust help system behind her. Her mother and father, Vince and Mandy Hawks, visiting her each single day.

The household adjusted their way of life to make it work. Sharing one automotive, Mandy would drive Vince to work after which head to Youngsters’s with Hannah.

“We come up right here and I often do Naomi’s dressing on her omphalocele within the morning, get her dressed, get her tooth brushed, hair brushed after which the women play and I hang around,” Mandy Hawks stated.

Then Mandy and Hannah would go decide up Vince from work, just for certainly one of them to return to place Naomi to mattress at night time.

“That is our regular, so we do not know anything,” Mandy Hawks stated. “We turned mother and father as a result of we needed to be mother and father and deal with our youngsters. We found out the way to do it, even within the hospital.”

Their little woman lastly left the hospital on Tuesday.

“It sort of hasn’t sunk in but,” Mandy Hawks stated.

After 650 days, Naomi took her victory lap by way of the halls of Youngsters’s.

“She’s obtained a sworn statement that’s simply going to blow individuals away,” Mandy Hawks stated. “Her life is already a legacy, I feel.”

“For them to be rewarded by having each their youngsters underneath the identical roof tonight could be very heartwarming,” Macfadyen stated.

Naomi’s hospital visits are removed from over. She nonetheless wants full help from a ventilator and her lungs have to develop extra earlier than docs can think about performing a surgical procedure to reverse her omphalocele.

Mandy Hawks…

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